We are back from Dallas. Our appointment went GREAT! We met with the anthropologist and he said his measurements show a huge difference. We went to meet with Dr. Fearon and also met with a couple doctors one from Dublin and one from Brazil who are studying with him to learn from him. He asked about any concerns we had and I told him about the ridge I felt which is in the same place as the previous. He felt around and said ... "Oh I feel that too". Sigh of relief that I'm not crazy and yet oh oh what does that mean? He said its fine and just a suture. He had moved his skull around and this is just the lambdoid suture I am feeling. He said his head is going to be changing a lot over the next couple years and we should expect to feel lumps and bumps. He said it should fade and everything is fine.
He also said they ran genetic testing and it came back clear. Craniosynostosis was not a result of genetics. Great news so if we decide to expand our family we would run a low risk of our next child having cranio and Hudsons children (seems weird) should not have cranio. Hopefully this is all behind us!
He repeated several times that I have a perfectly NORMAL boy. He is cleared to play all sports, he can sky dive, ride a bike ... he is a normal boy. We brought some extra Chicks Dig Scars shirts for Dr. Fearon, Dr. Swift (our neurosurgeon), Cindy (his nurse) and asked him to get one to our PICU nurse who was just amazing. Cindy said she kept the Hudson Raven - Strength - Courage - Love bracelets we gave her which made me smile. Then we gave them all hugs and said see ya in a year! Dr. Fearon will be seeing him every year for the next 18 years. Good thing we love Dallas!
Now we are on to planning fun things like a photoshoot for Hudson (a non medical photoshoot!) And planning his first birthday! Ahhh that makes my eyes well up just thinking of how much we have to look forward to. And just being able to live in the moment. Right now we don't foresee any more surgeries. For now I am going to allow myself to breathe and try to let the fear of being too happy go. This all feels too good to be true, to happy and I don't want it to be taken away. But fear does just that. Its time to just be for awhile. Be happy, watch Hudson grow, watch him take his first steps, laugh at all his funny new words. For the first time in a LONG time I feel a sense of relief and just plain happy :)
"Let go of the past and go for the future. Go confidently in the direction of your dreams.
Live the life you imagined."